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More About The Organisation
TSC is a complex genetic condition caused by an alteration in a gene.
People with TSC have growths in different organs of the body (brain, heart, eyes, skin, kidneys, lungs) and may have epilepsy, learning disabilities, autism spectrum disorder and kidney problems.
Symptoms vary from one person to another with some people showing very few symptoms and others more severely affected.
The TSA aims to support families and individuals affected by TSC in a way that suits them. We have dedicated regional support advisers, an active online community, we organise regional groups giving families the chance to meet face-to-face and we organise an annual Family Day’s bringing together professionals and updating you on the latest research.
If you have used our services we would love to know what you think of them. Or maybe there is a service you would like us to provide. Email: firstname.lastname@example.org