Organisation Contact Details

Organisation/Group Name
Tuberous Sclerosis Association
Telephone

Address

Address 1
CAN Mezzanine
Address 2
32-36 Loman Street
Town
London
Postcode
SE1 0EH

Categories

Categories
Parenting & Family Support Advice & Support - General Community & Living Health and Well Being

More About The Organisation

Organisation Details

About Us

TSC is a complex genetic condition caused by an alteration in a gene.

People with TSC have growths in different organs of the body (brain, heart, eyes, skin, kidneys, lungs) and may have epilepsy, learning disabilities, autism spectrum disorder and kidney problems.

Symptoms vary from one person to another with some people showing very few symptoms and others more severely affected.

The TSA aims to support families and individuals affected by TSC in a way that suits them. We have dedicated regional support advisers, an active online community, we organise regional groups giving families the chance to meet face-to-face and we organise an annual Family Day’s bringing together professionals and updating you on the latest research.

If you have used our services we would love to know what you think of them. Or maybe there is a service you would like us to provide. Email: social@tuberous-sclerosis.org

Accessibility

Is your organisation close to public transport?
No
Is there a car park nearby?
No
Is there accessible parking on site?
No
Is there a pedestrian route?
No
Is it smooth and with dropped kerbs?
No
Are doors 900mm or more wide, with flat thresholds?
No
Do you have external ramps?
No
Do you have a lobby / porch area?
No
Can wheelchair users clear the outer door prior to opening the inner?
No
Are there interior automatic doors?
No
Are there wide unobstructed corridors (minimum 1200mm)?
No
Do you have a lift for wheelchair users?
No
Do you have internal ramps?
No
Do you have internal steps?
No
Do you have a visual / flashing fire alarm?
No
Do you have accessible toilets?
No
Do you have an accessible changing room with a changing bed and a hoist?
No
Do you have a quiet room or a quiet area?
No
Do you have an outdoors play area?
No
Is this safe and enclosed?
No
Are the outdoor areas well lit (for evening activities)?
No
Do you have a soft play area?
No
Do you have a sensory room or area?
No
Do you have an induction loop and / or radio mikes?
No
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