Organisation Contact Details

Organisation/Group Name
PANS/PANDAS UK Charity
Contact Person
Vicky Burford

Venue

Venue Contact Details

Venue Email Address

Categories

Categories
Parenting & Family Support Advice & Support - General Health and Well Being

More About The Organisation

Organisation Details

About Us

PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.

One estimate suggests that up to 1 in 200 children suffer from this condition.

Resources for parents including diagnostic criteria and details of local support groups.

Resources for Medical professionals

Resources for teachers and Schools

Teacher training package

Facebook group for parents/caregivers

Facebook group for Young People age 12-17 with the condition.

Facebook group for Adults

Links to further Research

Advocacy and support from the charity

Any Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions. Affected children can be in mainstream, alternative, specialist provision or electively home educated.

Type of Organisation
Charity

Opening Times

Are you open during term time?
Are you open during school holidays?

Your Service

Comments

Please join our Facebook group PANS PANDAS UK, where you can obtain further support as and when needed.

If referral then by whom? For example, Social Worker, School, Doctor, Self-referral?

Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.

Waiting Lists

Do you have a waiting list?
No
Comments

All of Bath and North East Somerset covered. We provide support via our Facebook group PANS PANDAS UK.

Costs

Costs

Free at point of access, supported through the PANS/PANDAS UK Charity.

Areas Serviced

Do you welcome people using your service from the Bristol area?
If Yes, do you welcome people from all areas of Bristol using your service?
Do you welcome people using your service from Bath and North East Somerset?
If Yes, do you welcome people from all areas of Bath and North East Somerset using your service?
Do you welcome people using your service from the South Gloucestershire area?
If Yes, do you welcome people from all areas of South Gloucestershire using your service?

Who can use your service

Age of Users
From 4 To 19
Who can use your service?

Parents, Carers, Educators.

Are there restrictions on who can use this service?

No.

Accessibility

Is your organisation close to public transport?
N/A
Is there a car park nearby?
N/A
Is there accessible parking on site?
N/A
Is there a pedestrian route?
N/A
Are doors 900mm or more wide, with flat thresholds?
N/A
Do you have external ramps?
N/A
Do you have a lobby / porch area?
N/A
Are there interior automatic doors?
N/A
Are there wide unobstructed corridors (minimum 1200mm)?
N/A
Do you have a lift for wheelchair users?
N/A
Do you have internal ramps?
N/A
Do you have internal steps?
N/A
Do you have a visual / flashing fire alarm?
N/A
Do you have accessible toilets?
N/A
Do you have an accessible changing room with a changing bed and a hoist?
N/A
Do you have a quiet room or a quiet area?
N/A
Do you have an outdoors play area?
N/A
Are the outdoor areas well lit (for evening activities)?
N/A
Do you have a soft play area?
N/A
Do you have a sensory room or area?
N/A
Do you have an induction loop and / or radio mikes?
N/A
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