Organisation Contact Details
More About The Organisation
PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.
One estimate suggests that up to 1 in 200 children suffer from this condition.
Resources for parents including diagnostic criteria and details of local support groups.
Resources for Medical professionals
Resources for teachers and Schools
Teacher training package
Facebook group for parents/caregivers
Facebook group for Young People age 12-17 with the condition.
Facebook group for Adults
Links to further Research
Advocacy and support from the charity
Any Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions. Affected children can be in mainstream, alternative, specialist provision or electively home educated.
Type of Organisation
Are you open during term time?
Are you open during school holidays?
Please join our Facebook group PANS PANDAS UK, where you can obtain further support as and when needed.
If referral then by whom? For example, Social Worker, School, Doctor, Self-referral?
Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.
Do you have a waiting list?
All of Bath and North East Somerset covered. We provide support via our Facebook group PANS PANDAS UK.
Free at point of access, supported through the PANS/PANDAS UK Charity.
Do you welcome people using your service from the Bristol area?
If Yes, do you welcome people from all areas of Bristol using your service?
Do you welcome people using your service from Bath and North East Somerset?
If Yes, do you welcome people from all areas of Bath and North East Somerset using your service?
Do you welcome people using your service from the South Gloucestershire area?
If Yes, do you welcome people from all areas of South Gloucestershire using your service?
Who can use your service
Age of Users
Who can use your service?
Parents, Carers, Educators.
Are there restrictions on who can use this service?